Wednesday, April 22, 2015

Thank you Lord for my family


"Reflection As I gaze in the mirror of my own reality I find myself confused and uncertain Confused because I don't recognize the person I see and uncertain of my destination. As I gaze into my own eyes I search for unseen answers of questions asked yesterday, and I find my reflection and "I" yet at another stand still with no peace, and no contentment with careful eyes I search for unwanted characteristic hoping to change the reflection in the mirror. Hoping to see the person I knew before the reflection changed. Where had she gone? When will she return? More unanswered questions for my reflection... Are you happy with your reflection?

Words from the Heart of the UN innocent
by Horace D. McLain

I love this book, review it on Amazon
"This book contains 50 poems which are based on 10 second thoughts. Since it is dedicated to change and hope, the author is donating some of the proceeds from book sales to the American Cancer Society in hopes to aid in the fight against such a deadly disease."

My sister and niece were diagnosed with cancer, Von Hippel-Lindau syndrome, it is a genetic disease, and no one ever imagines that their family would be affected. My niece was diagnosed first, we were so lost, trying to figure out what side of the family she inherited the "one" gene from. Her father had passed away, as well as her grandparents from her father's side, my sister at the time had not been diagnosed with the cancer. It wasn't until three years later that she was diagnosed with the "one" gene that passed on to my niece. We were crushed even more. Words were not available for us, a beautiful mother and daughter team that have been so strong, standing by one another and supporting each other day in and day out. My nieces cancer was caught before becoming cancerous, but my sister's was caught to late. She lost her right kidney and since has had 1/4  of it removed. My sister was placed on experimental chemo drugs to help stabilize the cancer. There is no cure for Von Hippel-Lindau syndrome. My niece, although they did diagnose her early in her younger years, she has had many fights with the cancer, all affected organs were attacked. She's had several surgeries to remove the cysts, from her spine, one eye (which has left her partially blind) and her spine.

We are blessed, MD Anderson has been such a blessing to our family, God has carried us through this journey. We don't question why. We just praise Him for his Grace.

What is Von Hippel-Lindau?
"Von Hippel-Lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and most frequently appear during young adulthood; however, the signs and symptoms of Von Hippel-Lindau syndrome can occur throughout life."

More information can be found here:
Von Hippel-Lindau syndrome
MD Anderson Cancer Center






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